Even though Fiona knew immediately that she wanted to stay flat after her mastectomy, she met with pushback at every turn. Her surgeon required that she have a psychological consultation before agreeing to remove her “healthy” breast. She was treated as “less than” because of her decision to go flat. She was not given an aesthetic flat closure and still struggles with acceptance, using art to process her feelings.
I live in the UK, where I had my first mastectomy in 2014, aged 46. I was told I would not be able to have immediate reconstruction because I would need radiotherapy. That was fine by me – I instantly knew I would stay flat. My second mastectomy was elective, and took place in 2016. I had to have a session with a psychologist before the surgeon agreed, because it involved removing healthy tissue. I was really angry about this – had I wanted reconstruction, I could have gone straight ahead with surgery, no mental health checks needed, even if I went for extensive surgery to remove healthy tissue from elsewhere to use in the reconstruction. I felt that my choice to go flat put me right on the outer limits of acceptability. Every time I saw a nurse of doctor, that choice was questioned, and I was told countless times that I might change my mind. I knew I wouldn’t. Anyway, the second mastectomy didn’t go so well. I got a huge, breast-sized hematoma. I was told it would probably go down over the next few years. The reactions from the medical staff implied that I didn’t deserve any help to rectify this.
I felt that my choice to go flat put me right on the outer limits of acceptability.
I have no regrets about not going for reconstruction. I do have regrets that I didn’t know how to ask for aesthetic flat closure, or convey to the surgeons that I was totally certain aI have no regrets about not going for reconstruction. I do have regrets that I didn’t know how to convey to the surgeons that I was totally certain about my decision not to reconstruct, now or in the future. Looking at your website brings tears to my eyes, even 5 years on, knowing that I have a very visible hematoma mound on one side, uneven, ugly, scars, and big bulges under both my arms.’
The day before my first surgery I took photos of my right breast. The day before the second mastectomy I memorialised my one remaining breast by painting it and pressing against paper to make a print. I have put these on a website I’ve started, where I begin to explore my emotions around this, and how it makes me feel so closely connected to my mum who also had a mastectomy. The site is here: https://www.palimpsest.space/
I’m grateful to Not Putting on a Shirt for your advocacy work, and hope things will change so that women’s decisions and preferences are better respected in future, and others are able to get the flat closure they want. Thank you for your initiative.
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Thank you for showing me that I am not alone in flat denial hell. It has been a month yesterday and it is horrible to see my chest. I keep an undershirt on until I change for bed in the dark. The mental part has been bad, I have an appt to get mental health therapy. I have the 1st visit where Dr recorded I wanted flat no reconstruction. I also have where I told the radiologist I wanted flat when he told me it was a cancerous mass. With knowing you have Cancer is hard but then to chose a flat mastectomy and getting a major surgery that was botched and not what you expected is the hardest thing to comprehend. My cancer was hormone positive so hormone blocker medication has amplified the situation. I have before, day of and weekly pictures and after a month I am still bruised. I’ve had to get needle aspiration of fluid that built up 3 days after drains were removed. I have also had my husband or my sister at every visit. It’s just so degrading and I know this surgeon has done beautiful work for others so why me? This surgeon has also commented the reason for the bulging under my arms was because I was fat. I wasn’t fat but I was large busted, 180 at surgery. Sorry so long but again thank you.